09-13-11

I’m finally back to the apartment and my computer, so I decided to catch up on what’s been going on with me!  The last time I blogged was my first hospital admission.  I was there for a week.  It was a very difficult week, the bright spot being the day Daddy and Jan came to visit me!  I needed to see my Daddy really bad!  And Jan is always a bright spot and I appreciated her driving daddy to Houston to see me and Wade.  They spent the afternoon, we had a great time!  Glo arrived on Wednesday to spend a week with me, and I was so happy to see her!  At the end of that week, the Doctors decided that I could be dismissed if I could control my pain with oral meds.  Up until then it was mostly  IV, pain pump, etc.  So on Friday the 9th I was dismissed.  This only lasted until Sunday when Glo and I made the dreaded trip to the emergency room.  That night I was admitted again, this time to the 17th floor.  This floor has recently been remodeled and the rooms are very nice, large, big windows, you get the picture!  Again , it was controlling pain and side effects from pain medication.  The BK virus is unbelievably painful, and since it is a virus it is unpredictable.  The pain is something I will have to live with for a while.  They got me somewhat straightened out and released me late this afternoon.  So happy to be back at the apartment!  Glo picked the most difficult week to be my caretaker…she had her work cut out for her!  Glo is a fabulous cook, and cooked shrimp scampi over linguine noodles, caesar salad, baked potato, and asiago bread.  I loved every bite!  Tomorrow she will fly out to Montana and Wade will fly in.  I will go back to the hospital and receive the cidofovir which is the drug they are hoping will help with the virus and I will see my team.  Meanwhile it is good to be back at the apartment again!  Maybe tomorrow my team will give me an idea of when I can go home to Hereford.  I am trying to keep my head up!  Here are some pics:

                                                                                                       I look like my daddy…our bald heads even look alike!

                                                                                                                                                                                                                                I love these two!