My new motto: I’M GOING TO FAKE IT TIL I MAKE IT ! Here’s why….there is so much more positive energy and jive in wellness rather than the funky feeling of not being well. As I have said before, gotta keep moving forward! I did look back (at my pill journal, that is) just to get a feel for how much I have improved. Here’s the stats: during the middle of September I was taking 48 pills a day. This was when the BK virus was at its worst. Today I will take only 18 pills. That’s progress! Of these 18 pills, 7 are preventive meds to keep me from getting sick. Anti-viral, anti-bacterial, anti-fungal, and anti-pneumonia. They have worked wonderfully…so far since I started this journey the first of May I have not been sick except for the BK virus which nothing can prevent! These meds will be discontinued when I am no longer on steroids and I’m being weaned off of my immune suppressant drug. Speaking of, still eating like a horse and weighing in at 89 lbs. According to my scale I have gained a pound! Yippee!
Got through Cycle 3 of my chemo last week. Made the daily treks to Amarillo and Stephanie did a great of giving me those shots in my belly. Harrington is a wonderful place with caring people! About the only problem I’ve had is chemo-related fatigue. No nausea since I take the nausea meds. Nine more cycles to go!
I will be going back to Houston on Nov. 8th to see Dr. Hosing, have a bone marrow biopsy to see how my donor and I are getting along and how my chemo is progressing, and some secondary tests scheduled by my survivorship nurse. I will have a pulmonary lung function test and bone density test. This is because the extremely toxic chemo I took before my transplant that killed my bone marrow can cause problems elsewhere in my body. Every time I go back I will have different tests to make sure I am OK. And of course the immunizations since my childhood immunizations were wiped out.
Have a Happy Halloween! Eat lots of chocolate!
And I’m going to fake it til I make it !