Monday 02-28-11

A lot has happened since my last post!  First of all, I ended up getting in with a doctor at Harrington Cancer Center. As it turns out, 2 nurses who worked for the very first hematologist I went to who diagnosed my disease (and is now in Maryland) work at Harrington.  One of them, Tonya, talked to the doctor and got me in.   My appointment went well, except that I learned my neutrophil count is too low to start chemo (.33 last week).  So beginning today I will go to Amarillo and get a neupogen shot every day for 3 days. Then hopefully I will be ready to get started.  The past few days I haven’t felt well at all…..lots of nausea which didn’t work real well with a fast road trip to Houston over the weekend to move out of my apartment!  Since we are delayed with the transplant, we decided to give up the apartment for awhile and try to get it back later when we need it again.  We came back through Flint (Tyler) and visited Mother and Daddy and Jan and Bill and had a very nice time. It was great to see them!  Loved it!  I am so happy and thankful that Daddy is doing better!  Mother seems good too.  Yay!  We had a delicious meal Jan had prepared:  Italian Beef Sandwiches with pepperoncini from The Pioneer Woman’s blog.  Very good!

While in Houston we went to our favorite Italian restaurant down in the Montrose area.  On the way we pass through the museum district which is very cool.  I always admire this building, The Glassell School of Art (part of The Museum of Fine Arts).  It is appropriately made entirely of glass bricks.  Here is a pic:

On to the Italian restaurant Dolce Vita Enoteca.  This place is considered to be Number 3 in the nation for the best pizza.  We let our waiter order for us.  He ordered the pizza he loves after a long night at work….the “calabrese” which has tomato, mozzarella,and spicy salami.  He then adds over-easy eggs and covers the whole pizza with proscuitto.  It was to die for!  Their crust is like none other!  We also had a salad of Italian parsley, fried pancetta, and parmesan; risotto and mozzarella fritto; and calamari with mint, oranges, and olives.  So yummy!  When in Houston, go there!  Their parent restaurant with fine dining is Da Marco, and Poscol is their wine and antipasta bar. We hope to try these out on our next trip.  All down on Westheimer.  More pics:

Bye for now!  Everyone have a great Monday!

Friday 02-18-11



Sweet:  Happy Birthday Daddy!  Hope you had a wonderful day, and I am so glad you are feeling better!  Big hugs for you and Mother.  I love yall so very much!


Sour:  When a Hematologist Oncologist at Harrington Cancer Center in Amarillo doesn’t want to accept me as a patient for interim care (chemo) while waiting for stem cell transplant because I am a patient at MD Anderson Cancer Center.   This also happened to me 2 years ago at Texas Oncology in Amarillo.   REALLY???????

Thursday 02-10-11

HAPPY 25th BIRTHDAY HAYES !!!!!!!  Hope you have a great day and year!  You so deserve it, and I love you so much!  Twenty five years ago, you were about 2 hours old and the sweetest little baby boy in whole wide world!  Happy Day!

Well, to catch up, I did not have to have my root canal!  YAY!!!  My endodontist, Dr. Kirk Coury in Amarillo took a scan with this cool 3D xray machine and determined that the tooth was not abcessed.  It appeared abcessed in the traditional xray ,but with his new technology could determine that it was the pattern of bone behind the tooth that made it look that way.  I was so happy.  Dr. Coury has been involved with this disease process I have gone through from the beginning because for some reason, mouth problems have cropped up along the way.  Like weird mouth troubles!  He has performed surgery to remove a cyst, and has done 2 root canals because I had a terrible condition called Trigeminal Neuralgia (facial nerve pain).  Tuesday Dr. Coury looked in my mouth and asked me if I was anemic.  Smart guy!  Yes, getting closer to needing a couple of units of red blood.  He is very intelligent and caring, which shines brightly through his staff.   I appreciate the care he has given me.

Tuesday was also Sydney’s 12th birthday, and we had a fun party, steak and crab legs, and birthday pies which she requested instead of cake.  She wanted a pecan pie and a cherry cream cheese pie.  So that is what we had!  She finally got a cell phone and is so very happy!  Look up The Pioneer Woman’s Pecan Pie.  It is to die for!

Tonight for Hayes it is German Chocolate Cake after chicken fried steak, mashed potatoes, and green beans.  Yummy!  Harley asked me to put “I Love You” on his cake!

Still don’t know the time frame for the transplant yet, but will keep you posted.  Everyone have a great day!

Monday 02-07-11

Getting transplant ready… exam last Thursday revealed a cracked tooth that needs a root canal which I will get early tomorrow morning. No idea, that blew my mind!  But I was on so much high powered antibiotic medicine during chemo that I wouldn’t have known anyway! Eyes checked today……need new contacts and bifocals and a prescription for antibiotic eye drops.  Wow!  My attitude has just about gotten transplant ready also.  The “bad days” are overtaking the “good days” now,  and thinking about being “transfusion dependent” pretty much sucks.  After this week I should be ready.  The transplant team wants everything taken care of that could possibly cause an infection since I will be without an immune system for awhile.  They will just wipe it out with chemo and radiation.    And wait for the transplanted stem cells to do their thing.  I am ready!