02-21-12

Hi Peeps,

Well, I got through my week of chemo, but with this round I had more side effects.  Mostly tiredness and loss of energy, and loss of appetite.  My leg with deep vein thrombosis also decided to flare up.  Long story short, the coumadin wasn’t working very well so now Wade gives me lovenox injections every morning and night.  You should have seen us last night with the first shot….I was all tensed up and he was afraid of hurting me!  I felt so sorry for him!  But this morning was much better, we have a great system going now.  The swelling and pain seems to be better today so maybe the shots are working.

Here is some fun news…I have been asked by Jo at UT Television to do a video interview on what to expect on your first visit to MD Anderson.  I will also be in a video interview about the Rotary House.  These will be on the MD Anderson website.  Wow!  I was very flattered and pleased to be able to do this (and a little scared I have to admit)!  Hopefully I will be able to say something that will be helpful to others.  Interviews will be during my next appointments at MDA the first week of March.

Last but certainly not least, a picture of the beautiful watch my dear friend and  nurse in Houston, Patti, made for me.  She put all of those links together.  This is the third piece she has made for me.  This type of jewelry making is called chain maille.  I was going to take a picture with the watch on my wrist, but I have not so beautiful ecchymosis, which are purple spots due to bleeding under the skin (one of my side effects).  Chain maille dates back to 300 BC when clothing, armor, and all kinds of things were made with maille.  Patti’s chains are so smooth and beautiful it is truly amazing!

Bye for now!

 

02-09-12

Basically I got a good report last week at MD Anderson.  Dr. Hosing told me I can quit taking the steroids now (which caused me to do a little happy dance!), my thinning bone problem might be manageable with calcium supplements and exercise, but the bad news is I did not read my instruction sheet for my bone marrow biopsy which was a mistake!  I needed to be off coumadin for 7 days prior to the procedure and I didn’t even think about it.  I have had so many of those biopsies that I don’t read the instructions that they mail to me.  Whoops!  So I will go back the first of March for the biopsy, and I will also see a dermatologist and dentist there in MDA to see if my problems are due to graft vs host.  It was a quick trip.  My friend from San Antonio and I will get together another time.  Wade and I had a great meal with Richard and Patti (my nurse during my bone marrow biopsies) at Churrascos South American Grill.  Their steak is excellent.  It is marinated in a chimichuri and is listed in the top 20 best steaks in the country.  They have delicious empanadas, and the tres leches cake is to die for!  The second night we were there we had dinner with Kelli, Tony, and Lynzi at Pappadeaux which was wonderful. Just too short!  It was great to spend time with them.

While at the hospital I got to meet Lucy who works in Communications at MD Anderson and asked me to blog on MDA’s  Cancerwise blog.  I instantly loved her…she is the sweetest!   Here is a pic:

Next week is chemo week for me, and I am hoping it won’t be too bad this time.  Maybe by then I will have some of my reports back from Houston.

HAPPY BIRTHDAY TOMORROW , HAYES!!!!!

Here are some more pics:

                                                                                                                                                           I LOVE my mom and dad!

                                                                                                                                                   Dinner at Churrascos with Patti and Richard

                                                                                                                                                   Kelli, Tony, and Lynzi at Pappadeaux

                                                                                                                                                   Me with my girls

Hope you all have a great weekend!