06-25-12

New post up on MD Anderson Cancerwise!  Here is the link:   http://www2.mdanderson.org/cancerwise/2012/06/my-donor-and-life-saver.html

It is also posted on MD Anderson Cancer Center on Facebook:  http://www.facebook.com/MDAnderson  .  There are some awesome comments here for my stem cell transplant donor, Robert Gawlas!  Go check it out!

To catch up a little bit, I made it through Round 9 of my Vidaza chemo…that means only 3 more to go.  I am beginning to think I can make it all the way through!  Tiredness, loss of appetite, and swelling of my legs and feet are the main side effects.  Thank goodness for flipflops!!!

Wade and I are looking forward to next weekend…we will be in Dallas for the Texas Rangers game on Saturday night.  One of Wade’s colleagues has given us tickets to watch the game in his box, so that will be exciting!  I will try to get some pictures to post!  Speaking of pictures, here is one of my most favorite people in the whole wide world, who we saw the last time we were in Dallas.  We’ve been hanging out with him occasionally for several years now.  He plays the piano at the piano bar at Del Frisco’s Steakhouse in Dallas.  We popped in just for a few minutes to say hi, and can’t wait to go back when we can stay longer.  Les is amazing! And incredibly talented!  I love you Les!  If we don’t see you this trip, we will be back soon!

 

Lazaranda Mexican Seafood Grill on Beltline in Addison is a casual, fun place to eat Mexican seafood in Dallas.  It is authenic Mexican food, not Tex Mex.  I read that the owner came from Monterrey, Mexico.  The food  is very different, fresh, and yummy!    Great margaritas too!

                                                                                                                                                                                                                           Excellent salsas

Grilled fish with house marinade, rice, and fresh vegetables

Tacos, black beans, and guacamole

 

 

My dear friend who posts my blogs on MD Anderson Cancerwise, Lucy, is interviewing Dr. Garcia-Manero today for a future blog post.  I was so very excited!  He is considered to be the number one authority on Myelodysplastic Syndrome in the world!  And I especially love him because he was my first doctor at MD Anderson,  he truly cared for me, and tried all options before sending me to my sweet Dr. Hosing in the Stem Cell Transplant department.  With Robin Roberts’, of ABC’s Good Morning America, diagnosis of MDS, I think it will help to bring awareness about this disease that most people know nothing about.  Whenever that post of Lucy’s is published, I will post a link.  I love Robin’s coordinating and sometimes sparkly PICC line covers!

Until next time, love each other!

Holly

 

 

 

06-17-12 MY DONOR ROBERT!

I HEARD FROM MY DONOR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

All through out the year since my transplant I have tried not to get my hopes up just in case my donor wanted to remain anonymous.  And then a couple of weeks ago, I received the most thoughtful, sweet email from Robert!  I wanted to make sure it was ok with him if I blogged to the whole world about him and also asked for pictures to share.  Robert Gawlas is a senior at the University of Pennsylvania where he plays football.  After he wrote me the email, I googled him so fast it would make your head spin!  And there were a lot of great things I found out about him, which only confirmed what I had thought about him all along!   A nineteen year old young man who would do this for me  has got to be a very special person!  According to his bio on pennathletics.com, he is a 6’4″ 250 lb. tight end.  He was outstanding in track in high school, in fact he told me he is going to walk on to the track team in the spring.  He is applying for law school, I know he will make it!  Above all, it is so obvious that he has a big heart, is very unselfish and giving!   I have been very emotional since hearing from Robert…everything I say seems trivial compared to what I feel.  There are just no words to describe the feelings I have for Robert and for him saving my life!  His mom took pictures of him in the hospital last year hooked up to the apheresis machine donating the stem cells at a hospital in Pennsylvania that I received the following day at MD Anderson in Houston, so I am going to post them for you:

Wade and I hope to meet Robert as soon as we can all get together.  I can’t wait to see him and hug his neck!  I will blog more about Robert later.  But for now…………

EVERYBODY GIVE ROBERT THE LOVE!

06-03-12 National Cancer Survivors Day!!!

Happy National Cancer Survivors Day!  Happy me!  According to MD Anderson Cancer Center News on Facebook, there are over 10 million cancer survivors in the U.S.  And I am so proud to be one of them!  I have my doctors and health professionals at MD Anderson Cancer Center to thank…along with all the prayers and support of my husband, family,  and friends!  And my donor for donating stem cells to save my life!

Please check out the site:  www.facebook.com/MDAnderson

And to all my fellow cancer survivors, HAPPY NATIONAL CANCER SURVIVORS DAY!

Cancer is no party…but being a survivor is something to celebrate!