*I’m finally getting back to the blog…I started this blog a few days ago, and decided to take a few minutes to finish it. I started it with good news, but am ending with sadness*.
It has been a whirlwind, but thanks for being loyal followers! In fact a couple of weeks ago my counter registered over 20,000 hits! That made me so happy! I totally appreciate all of the hits, comments, interest, and concern.
Last week Wade and I went to Houston for my appointment with Dr. Hosing. As usual, I looked forward to my appointment, hoping for good news and getting to see my Doctor and P. A. again. My appointment went very well…liver function was improved, I can start getting my childhood immunizations as soon as I am off Coumadin, and I don’t need to return for 3 months! GVHD is still in my gums and I will treat it with mouthwash they prescribed for me. At the next appointment in 3 months I will maybe be able to start weaning off of my sirolimus if I have no problems with GVHD. This is great news! Another exciting thing was that I signed forms to be sent to my donor to find out if he wishes to remain anonymous or would agree to meet me! My first transplant birthday is next week, May 24. What a milestone!
I always feel like I am going back home when I make these treks to the stem cell transplant department at MD Anderson Cance Center. I feel like I am in the best care possible…I have so much love and respect for my Doctor, Dr. Hosing, my PA Erin, and my nurse Kelli, whom I forgot to take a photo of. I will try to remember next time! These are amazing women who truly care! Dr. Hosing has gotten me safely through some pretty rough times. And sweet Erin is always available to help when issues crop up along the way. Top photo is me with Dr. Hosing, bottom photo is me with Erin (and my new head of hair!) I am so thankful for these ladies and love them dearly. They truly are a blessing to me!
A lot of events have happened along the way since this appointment 9 days ago. Here is a brief rundown. I will blog more about specifics later.
5/10 – flew to Dallas
5/11- Wade had a day long preventative diagnostic physical at the Cooper Clinic in Dallas in honor of his recent 50th birthday. They found his 3rd Castleman’s tumor in his chest, a rare usually benign tumor. Most Doctor’s have to go look this one up! His brother also had one, and his daughter, Shelby, has had one.
5/13 – A Happy Mother’s Day…back in Hereford
5/14 – Appointment with Dr. Ravipati in Amarillo and then plans to start cycle 9 of vidaza chemotherapy. I had a mild sore throat that morning and a lower white blood count, so Dr. Ravipati ordered a neupogen shot for that day and the next and postponed chemo until next week. I couldn’t understand this sore throat and delay.
5/15 – back to Amarillo for another neupogen shot. This morning I got a call from my sister, Jan, that my mother’s health was deteriorating rapidly. She has been on home hospice care for 3 weeks. I then realized it was another “timing” issue, possibly like the one I described in my Colby Blog. I now understood that my mild sore throat that went away quickly had freed up my week to be in Tyler.
5/16 – flew to Tyler to be with my family and my Mama. We remain by her bedside. We have shared so many wonderful memories…and lots of tears.
5/18 – my plans are to fly home tomorrow. Please pray for my family and especially my sweet Daddy who is so very sad. He has been with my mama since they were 7th graders. They have been together for over 73 years and are a huge inspiration to all who knew them.
I will blog again when I can.
5/18/2012 – 12:30 pm – My Mama is now in the arms of Jesus. She was the very best Mom and I love her so very by much. We will all miss her. She was a beautiful, gracious, loving example and influence to many.
“In this life we cannot do great things. We can only do small things with great love.” Mother Teresa