On was the day before Easter Sunday, Wade and I were outside doing some major yard work/cleanup. Thanks to the drought we are in, there was lots of dirt from dust storms and suffering plants and grass. Not a pretty sight… The following morning there was one lonely, lovely purple flower on the vinca growing along the driveway. I had to snap a picture…it was a sign of new growth, hope, rebirth, new beginnings…all of the things we are mindful about on Easter Sunday. It was a sign! I was in awe!
Two days later, the birth of a new grandchild Ella, Haley and Jon’s first child. A new beginning! And since then, new beginnings everywhere in my great big wonderful family and family of friends! Relationships mended, old friendships renewed, new friendships nurtured, moving on with new jobs and endless possibilities, new opportunities, and graduations from high schools and college.
On my last appointment at MD Anderson a couple of weeks ago, everything was really good…only a few minor problems. Dr. Hosing is letting me very slowly try weaning off of the immune suppressant drug I am on, sirolimus. When I tried this last fall, it didn’t work very well. Graft Vs Host set in very quickly. There were liver issues, and I was back on the drug. However, last Monday when I had my blood checked, it was the most normal blood test results that I have had in years!
Today is my SECOND birthday! Exactly 2 years ago I received stem cells from my donor, Robert. What a trip it has been! During those two years I suffered temporary blindness and migraine headaches from drug reactions to tacrolimus and cyclosporin, all of the usual terrible side effects from busulphan and ATG, weight loss of 40 pounds, graft vs host on my skin, in my upper GI and lower GI tracts, liver, and gums, muscle weakness and foot-drop from steroid use for GVHD, deep vein thrombosis in my left leg, and a very rare virus that we stem cell transplant patients are extremely unlucky to get – The dreaded BK Virus! Then there are all of the emotional issues I dealt with. Some of the most difficult were friends that moved on without me, chemo brain, and dealing with depression and forgetfulness.
I am not griping! With my wonderful husband, Wade, constantly by my side, all of my energies, which were mostly spiritual rather than physical (fellow survivors will relate to lack of energy!), were devoted to getting through…getting by…getting well. Each baby step offered new hope. Baby steps turned into more normal steps, and sometimes even happy feet!
So, on this special day that I am now 2 years old, I want the world to know that all of those trying times are worth it. Be steadfast, hopeful, positive and kind, appreciating each day, turning baby steps into happy feet. We can only have positive outcomes when we have positive attitudes. I pray daily for positivity in my life. And I pray for those less fortunate than me.
Speaking of all of these new beginnings, Robert, my donor, is my life saver! With out his complete and selfless act of love and compassion by giving me, a total stranger, his stem cells and a new chance at life, I would not be writing this post. He just graduated from college and will soon be entering law school. Another new beginning! I know he will be very successful with anything he does. Robert, you are awesome and amazing! Today I am celebrating 2 glorious years of new life and new beginnings. But I am also celebrating Robert! I love you Robert! And I love my great big beautiful family!