Hello Everyone! I’ve had the dead head for a while and haven’t felt creative enough to blog, but I’m getting my mojo back now. Yay! I am not one of those that feels the need to blog everyday, especially when I don’t have anything interesting to say! Here’s what has been going on. I had my appointments at MD Anderson last month and learned that I have graft vs host in my gum tissue and possibly in my liver. The only way to determine if my liver problem is graft vs host would be to have a needle biopsy, neither my team nor myself is interested in that at this point. Instead they are treating me as if it is graft vs host, so it is back on the steroids again, “liver pills”, and prescription mouthwash for my mouth problems. This news about the liver was a big downer for me. However I do have weekly blood draws to check my liver function and it’s at least not getting worse – sometimes it is improved. I will go back in a week to be checked again. At the same time I had a flare up with the deep vein thrombosis, and a round of chemo with side effects that were worse than usual. Yes, I was about to throw myself a pitty party! Things are definitely much better now…. I am very thankful!
The fun things about my trip to Houston were the two video interviews I had while I was there. One for MD Anderson’s website for new patients, and the other a documentary on The Rotary House. I was soooo nervous, but Jo was awesome at the interview process, putting me completely at ease. And so was James, the videographer. They were awesome! When I get the DVD for the MDA piece I will post it here. The Rotary House piece will be ready later in the summer.
Here is the link for my last MD Anderson blog post: http://mdanderson.org/cancerwise You can then scroll down to my post or search Holly Easley in the search bar.
Yesterday was Wade’s birthday, one of those ending in “0”. We had a great day together! I love that man! We are in Saint Louis while he is attending a short business meeting. We will go home tomorrow.
Thought for today: (This one is for me!) “One of the things I learned the hard way was that it doesn’t pay to get discouraged. Keeping busy and making optimism a way of life can restore your faith in yourself.” Lucille Ball