I have had a great week…lots of fun with my girlfriends! Brenda arrived shortly after Kimmie left, and we had so much fun shopping, eating, laughing, and just hanging out! As I said earlier, what a great way to end my stay here! Wade is here now, and our weekend project is to figure out how to get all of our stuff packed in my vehicle. I will see Dr. Hosing on Monday and she will decide if I am ready to be released. I have a new “issue” going on…BK Virus. This is a virus that in its primary form is asymptomatic or a mild respiratory infection. The virus then disseminates to the kidneys and urinary tract where it stays for the life of the individual. About 80% of people have this latent form of the virus. It remains latent until the body undergoes some type of immunosuppression. It happens primarily to transplant patients. The steroids and the immunosuppressant I take for Graft vs Host disease are what brought it on according to Dr. Hosing. There are no drugs to treat it, it just has to run its course, which can be a few weeks to 2 months. My team is working hard on managing my symptoms. I am on continuous IV fluids (24/7) to try to flush the virus out of my system. I carry a tote bag with me everywhere with the IV bag and pump in it. My major symptom is pain. Kidney and urinary tract pain is absolutely brutal! In fact, this morning Wade almost took me to the ER….the pain meds I was on had worn off before the next dose was due. They have upped my pain meds to oxycontin and dilaudid which will be much better. If I can prove I can manage my symptoms over the weekend, I think Dr. Hosing will release me on Monday. If not, then I will be here another week. Keep your fingers crossed! On Monday, it will be day +98, only 2 days shy of that magic Day 100. Meanwhile I’m not looking down, I am focused on home!
Here are some fun facts:
I just reviewed my medications list with my Pharmacy Dr. and started counting….22 different meds each day. Quick, grab me an oversized pill container!
American Idol auditions are going on right now at Reliant Stadium, about 3 blocks from our apartment. There are 8000 contestants trying out!
Houston is the fourth most populous city in the nation. Wade says there is only one place hotter than Houston and that is…..hell!
“Houston” was the first word spoken on the moon.