Hi Everybody! This week has been a very busy week at the hospital. I’ve had a few hiccups so Jan, (my sister who is spending the week with me) and I have spent quite a bit of time at MDA. It started with Monday’s regular treatment, a dressing change that revealed wounds under my bandage adhesive covering my central line, central line was clotted and had to be worked on, and the new chemo, Vidaza, was started. Since my lines were clotted, I had to give all the blood for the Vidaza study and my regular bloodwork in both arms. The chemo injection turns out to be given in 2 injections since it is so thick. I felt like a pin cushion! Tuesday my bandage filled up with fluid from my surrounding lymph nodes and we made a visit to the hospital that night. Wednesday the lab couldn’t access my lines again to get blood drawn so it was another stick, atually 2 sticks, to get it drawn. This was the third day of chemo and I was really feeling the side effects. Plus, I have some sort of stomach pain and total loss of appetite. As of today I have lost 28 pounds. I am scheduled for an endoscopy with biopsy next Tuesday unless it resolves before then. Graft VS Host Disease happens on the skin, and also in the stomach. The biopsy will tell us if it is GVHD. It was back to Infusion Therapy to get declogged again, but amazingly the silly thing worked and gave blood return. Yay! Today I had my regular visit with my team and they feel like my rash has hung around long enough to do a punch biopsy on my stomach. It wasn’t bad at all, a little shot to numb, then a punch removed a perfect piece of tissue, then a suture. Two more Vidaza shots today. The Vidaza shots make the injection site very sore and red, so the backs of both arms and 4 spots on my belly are very sore. Plus the biopsy sight! I’m a mess! Everything is good though, today I felt better, not as much nausea (I’m on nausea medicine 24/7), or tiredness, and lack of energy. Jan and I managed to do some fun things, and it has been great spending time with her!
Before Jan got here, Kelli spent one night with me on Thursday. I’m posting a picture of us at Escalante’s eating dinner. It was a fun evening. The next day we did a little shopping and hung out. Fun times!
On Friday night Hayes and Harley got here from a vacation in San Antonio! They stayed until Sunday morning. It was a special treat! Harley and I played paper dolls and we all three just hung out together and did a little bit of shopping. It was wonderful! I was so sad to see them go (lots of tears!) Oh how homesick I am! I miss my grandkids so very much! Can’t wait to go home.
Jan will leave in the morning, and Wade will get here right after lunch. Tomorrow is our 7th anniversary! Patti and Richard, my nurse and our good friends, invited us out for dinner because it is also their anniversary tomorrow. My appetite and nausea are so bad we decided to postpone until it improves. Disappointing! I’m ready to see my honey tomorrow!
Hope you all have a great weekend!