Wow! I can’t believe I am 47 days out from my transplant! Every day is another day closer to going home….in fact I may be halfway there! Health wise I am doing good! I still have small fires to put out every week, the rash being the hardest to get rid of. The team thinks it is a touch of Graft Verses Host Disease (rejection). They say that a little bit of this is a good thing because it means my donor is fighting my remaining diseased cells which we want to be rid of. My counts have been hanging in there, still getting neupogen shots occasionally, but the last one was half a dose because I responded so much to the previous shot that my white count was phenomenally high. This means my donor’s stem cells are coming along nicely. It’s all good!!!!! My appetite seems to be improving although I still have my moments! I actually ate dinner 2 or 3 times this week instead of my usual bowl of oatmeal, which is a first! My appetite is best in the morning and usually gets worse as the day goes on.
This week I had Glo, my mother-in-law with me as my caretaker. We had a great week! Did some shopping, ate out several times, and relaxed, read, played a lot of Yahtzee and had a wonderful time! One evening we met her friends ,who have a summer home in Montana, for dinner. Sandy was here for her annual appointment at MD Anderson and got a good report. Yay! Wade flies in tonight and will be here until Thursday. I am ready to see that man! Then my sister, Jan, will be here for a week. I’m looking forward to spending time with her! Things are going very well, and I am so grateful.
One different thing that happened last week is that I had to get on Home Health because my insurance has a contract with them and therefore they are cheaper on my home IV magnesium and supplies and they won’t cover it from MDA anymore. Lots of paperwork, but it is going to be ok. They deliver to my apartment once a week everything I will need for the week. There is no pump involved, just a strange looking double walled bag with tubing attached, already primed. Very easy. Somehow there is pressure in the bag that makes it drip the appropriate amount per hour. It’s only taking about an hour and a half instead of the usual two hours which is fine with me!
Hope everyone has a great Monday!