It’s so hard for me to believe it has been almost a month since my transplant! WooHoo! Things are going very well right now. Basically I go to the hospital for magnesium IV treatments and to see my team, and then take magnesium IV treatments at home on my days off. And here is some great news….Blaire is here this week! I have loved getting to spend time with her, and she has been wonderful helping me this week with my appointments! For instance, yesterday I had a follow-up appointment with the Ophthalmologist at MDA and we waited for 3 HOURS before I got in! Then it was another hour and a half back in the treatment rooms. Oh my…it was ridiculous! We did not leave the hospital until 6:30 last night! Exhausted! Anyway, I did get good news from Dr. Kim at that appointment. All of the blind spots caused by tacrolimus have almost resolved. She showed me the before and after printout and it was amazing how bad it was! Now there were only 2 or 3 spots on each eye and she said they would resolve too. I was so happy to hear this! She said that it can cause complete blindness.
Today I had a bone marrow biopsy bright and early with my good friend Patti who takes care of me there. This test will help the Dr. to know how my donor’s immune system is getting along with me. Hopefully at the end of my 100 days after transplant, my immune system will be 100% of my donor. Right now I am still in there with some residual diseased cells and his immune system will go ahead and fight those and get rid of them. This is pretty intriguing to me! I won’t get the full report for 2 weeks.
Another good thing, Dr. Hosing took me off one of my meds to prevent graft vs host disease. I was taking 12 of these pills a day! I have to keep a journal to keep track of all my pill taking!
Blaire and I did a little shopping this afternoon for Charlie. He will be 5 in a few days! I can’t believe it! I miss my Grandkids SOOOO much! In fact, I miss everybody! When I really think about it, I know I don’t feel well enough to go home, but it’s a good thought anyway! So I’m closing on that thought! Night-night!