Well, I’m all checked in, one chemo treatment down, computer hooked up, and my biggest problem is that it’s hard to hold my head right for my bifocals and my computer monitor! Here is the low down. My chemo started at 4:30 this morning. The reason why they start it at that time has to do with your body’s metabolism…that is usually the time when cells are dividing and therefore the chemo is most effective. The infusion lasted several hours. I am on heavy doses of dilantin, which is a drug used to prevent seizures. The reason for the dilantin is that busulphan, (one of my chemo drugs) is a drug that will cross a boundary in your brain that most drugs don’t cross resulting in seizures. This is the exact same reason why I woke up toe-down-from-the-flow-down this morning! Totally inebriated, high, whatever! Then I had the headache, then hydrocodone…..! It has been very busy since I got here. I got to sleep at 1:00 am, after all the blood work, etc, and woke up at 4:00 to start anti-nausea medicine before the chemo. I’ve had the respiratory therapist in to train me on my 2 different lung exercises that have to be done every 2 waking hours, the chaplain came by for a visit, and the exercise therapist stopped in to enroll me in a study about the effects of exercise on BMT patients. Then lunch, a short nap, and 4 timed laps around the floor with the exercise therapist to see how far I could go in 6 minutes. I aced it! Wade has left for awhile to sit in his board meeting via phone this afternoon. I’m about to get a quick shower just in time to receive 2 units of red blood this afternnon. My hemoglobin is the lowest it’s ever been (due to my disease, not chemo – too soon for the chemo to drop my levels.) I need to keep in mind that is the reason I am here! I don’t want to live my life from one transfusion to the next!
My room is small, but all the things I brought with me fit fine. Kelli and Lynzi took me to eat an early dinner last night and helped me get admitted, then hung out with me until about 10:00. Lynzi did not like seeing the guy try to start an IV on me! It was not pretty and ended up having to be re-done at 5:00 this morning. (I had to have an IV for 9 blood test throughout today to check the pharmokinetics of my 2 chemo drugs). This morning Wade brought the computer, pictures, etc. so it looks so much better now. I am extremely happy he is here, I missed him so! It was a very long, difficult day for him. He made the trip from Ozona to Houston in about 6 hours!