11-09-12 Cancerwise Blog Post

Check out my 2 part blog post on MD Anderson Cancerwise – it chronicles my stem cell transplant at MD Anderson last year.

http://bit.ly/RKDuX0

http://bit.ly/TyYJLt
Hope you all have a wonderful weekend!

Be kind and love one another!

Holly

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3 thoughts on “11-09-12 Cancerwise Blog Post

  1. Well, Holly Easley, that’s a pretty understated timeline you’ve got there. Will you ever eat jello again? Did you ever think those complicated drug names would roll from your tongue with such ease? Are you now a little over 1 year old? When you see an aquarium, do you think of swimming stem cells? I’m so proud of my former colleagues that they have earned your praise, and I’m equally as happy that you persevered through all of it. Congratulations!

  2. hollyeasley says:

    Thank you, Linda! You always make me smile! No more jello….in fact the thought occurred to me that your candypult would have been an excellent way to get rid of any remaining jello and to relieve my stress! Hope your weekend is happy!

  3. Ariana Katz says:

    Dear Holly,

    I am a part of a team of researchers gathering feedback to guide development of supportive and educational resources for adults undergoing allogeneic hematopoietic stem cell transplant and their caregivers.

    My colleagues and I are asking for your help.

    We have developed a brief, anonymous online survey for adults who have undergone an allogeneic hematopoietic stem cell transplant and their caregivers. The survey asks for their feedback about the greatest challenges they faced during recovery (focusing on the time after hospital discharge, which is particularly challenging) and the kinds of resources that would have made recovery easier and less stressful.

    Getting their feedback on these issues would allow us to develop resources that specifically address their most pressing needs. However, we need help announcing the online survey so we can get their feedback.

    Because adult allogeneic transplant recipients and their caregivers use WEBSITE as a resource, an announcement on WEBSITE would be an enormous help in that regard. In case you are willing to help us announce the survey to adult allogeneic transplant recipients and their caregivers, we are including text describing the survey and link to it. It is pasted below.

    The survey takes about 10-15 minutes to complete. It will not collect any identifying information, so responses are completely anonymous. Because of that, the IRB at UNC-Chapel Hill has exempted the survey from IRB review. We do, however, begin the survey with an informed consent statement that gives people the ability to opt out of completing it, and that tells them they are free to skip questions and leave the survey at any time.

    Please feel free to contact me with any questions or concerns. I know you are busy and greatly appreciate your consideration.

    Sincerely,
    Ariana Katz for

    Christine Rini, Ph.D.
    Research Associate Professor
    Member, UNC Lineberger Comprehensive Cancer Center
    University of North Carolina at Chapel Hill
    Gillings School of Global Public Health
    Department of Health Behavior
    Campus box 7440, 319C Rosenau Hall
    Chapel Hill, NC 27599-7440
    Phone: 919-843-6580
    FAX: 919-966-2921

    ANNOUNCEMENT

    Are you an adult who has had an allogeneic transplant, or are you the caregiver of someone who has undergone this treatment?

    Researchers at the University of North Carolina at Chapel Hill are preparing to develop resources to help adult allogeneic stem cell transplant recipients and their caregivers. Their goal is to make post-transplant recovery easier and less stressful, and to help people get back to normal after transplant. They have developed a brief survey that asks transplant recipients and caregivers to provide feedback on the biggest challenges to having a healthy recovery after hospital discharge. They also want to know what kinds of resources would make recovery easier and less stressful. Your feedback on these issues would help them create those resources.

    The survey asks about:
    • The medications and self-care that were most important to you but that you found most difficult to follow after hospital discharge,
    • How well you think you were able to follow recommendations for medications and self-care,
    • Help and information you got, or that you would have liked to get, to help you follow those recommendations, and
    • Other kinds of resources that would have made recovery easier and less stressful.

    If you would be willing to provide feedback on these issues, please click on the link below. It will take you to the survey, which will take 10-15 minutes to complete. Your responses will be completely anonymous. If you have any questions, please contact Christine Rini at 919-843-6580 or christine.rini@unc.edu.

    Your Anonymous Survey Link:
    https://unc.qualtrics.com/SE/?SID=SV_bkJOZXVoBx1pVIh

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